I'm not getting worried yet. But since the State of Ohio is basically broke, they are cutting back everywhere they can. So I get a call from Ava's CareStar Case Manager asking me all these questions regarding her condition, her daily cares, etc. So I ask her, "they aren't cutting our nursing hours are they?" And she informs me that they probably won't but since we are so 'heavy' on hours (well, YAH, we have a vent-dependant daughter) they 'scrutinize' us more closely than other cases. We've kept Ava out of the hospital for 3 years now. And I feel it is because we have such an awesome nursing staff who not only follow strict aseptic technique, but they also know Ava so well.
Just pray that with everything else going on they do not mess with our nursing hours. I don't think they will, but let me tell you if they try...I will fight like a mad woman. I feel like we've entered a new season in life. With Aohdan's autism diagnosis, and the upcoming fundraiser, it just feels like our life has taken on a new dynamic.
Blessings everyone!
Vicki
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